Emerging Research Methods and the Consent Challenge


Banff, Alberta
September 25-27, 2016

There are many emerging and established biomedical research methods that have the potential to produce useful scientific data, improve clinical practice and lead to new therapies. Many of these methods are relevant to and being used in organ donation and transplantation research. However, they also create profound legal and research ethics challenges. For example, there has been an ongoing debate about the legally appropriate way to obtain consent. This event will focus on this consent challenge. We will explore what the existing law and regulations say — that is, what can be done under existing norms — and what the evidence says about public perceptions and policy challenges. The goal is to produce a paper (or several) with specific recommendations about possible policy reforms in the context of consent.

Click here to view event agenda.