Designing a Model Policy Framework for Privacy Challenges in Cell Therapy Research

FUNDER:  Office of the Privacy Commissioner of Canada (Contributions Program)

DURATION: May 1, 2012 – April 30, 2013

PRINCIPAL INVESTIGATORS: Profs. Ubaka Ogbogu & Timothy Caulfield

PROJECT SUMMARY:
This project examined privacy challenges associated with cell-based research and interventions. Research activities included a systematic and comprehensive review of relevant academic literature, analysis of the application of existing legal and ethical rules to privacy issues associated with cell-based research and interventions, a multidisciplinary workshop to discuss model policies and recommendations, and production of scholarly papers and reference materials. 

Please refer to materials below for details of the project proposal and outcomes.

Project Proposal

Final Project Report

Project Bibliography

Privacy Education Module: A Primer on the Privacy Challenges Associated with Cell-Based Research

Recommendations Paper

Policy recommendations for addressing privacy challenges associated with cell-based research and interventions

Papers (below)
(For viewing purposes only; unless published in an academic journal.  Please do not reproduce or cite unpublished papers. Final published version will be posted here subsequently)